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#UsingiziInitiative Rising Voices of Narcolepsy Speaker Narcolepsy Patient Advocate Sleep Hygiene Coach Sleep Disorders Awareness Let's make Kenya a Sleep smart Nation

Affecting all aspects of our lives, sleep is an undervalued element of good health in Kenya.
Sleep is a basic need and a vital part of the foundation for good health and well-being throughout your lifetime.
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About Narcolepsy

Narcolepsy is a life-long, neurological sleep disorder characterized by the brain's inability to regulate sleep-wake cycles. Typical onset of narcolepsy occurs between the ages of ten and twenty, although very young children are now being diagnosed. It affects 1 in every 2,000 individuals who have a genetic pre-disposition that is then activated by an environmental trigger.
Some of the characteristics of narcolepsy — such as cataplexy, sleep paralysis and hallucinations. There are two main types of narcolepsy: narcolepsy with cataplexy (Type 1) and narcolepsy without cataplexy (Type 2). Symptoms vary from individual to individual, with some cases being more severe than others.

Narcolepsy Q&A Understanding Narcolepsy

Symptoms

Excessive Daytime Sleepiness

The inability to stay awake and alert during the day. Even with sleep, an individual with narcolepsy can feel as though he or she has been awake for 72 hours straight. EDS is one of the first symptoms to develop in individuals with narcolepsy.



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Cataplexy

A sudden and uncontrollable, brief loss of muscle tone (paralysis of muscles} caused by experiencing strong or intense emotions (most often laughter, though also anger, pain, fear and stress are also a trigger). Cataplexy only occurs in Type 1 narcolepsy.



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Automatic Behaviours

When people with narcolepsy are tired and sleepy, they may carry out actions without thinking about them and often with no recollection of them afterwards. This is called automatic behaviour. For example, a student in school may appear to be writing diligently...



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Sleep Disruption

The breaking up of sleep by frequent awakenings, also known as fragmented sleep. Individuals with narcolepsy often transition quickly to REM sleep but then wake often, causing many more transitions from deep sleep into light sleep or wake.



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Sleep Paralysis

A brief inability to move or speak while falling asleep or upon waking up. This is most likely, caused by an intrusion into wakefulness of the normal paralysis that occurs during REM sleep. They can cause panic in a patient if he or she is not familiar with this symptom



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Sleep-Related Hallucinations

Individuals with narcolepsy may experience vivid dream-like experiences while falling asleep or upon waking up. Hallucinations when falling asleep are known as hypnagogic; when waking up, hypnopompic. These hallucinations can be experienced as multisensory...



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Diagnosed Patients

5

Countries Reached

200

Student Support Groups

46

Outreach Campaigns

Narcolepsy at a Glance

Narcolepsy Symptoms

Affects 1 in every 2000 people

Narcolepsy Symptoms

Infographics

Narcolepsy Symptoms

Hypnagogic Hallucinations

Narcolepsy Symptoms

Delay in Diagnosis

Narcolepsy Symptoms

Naecolepsy at a Glance

Narcolepsy Symptoms

Variation in Treatment

Testimonials

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Sleep Research

Abnormal sleep patterns seen in marijuana users

Maryanne Njũgũna

Using marijuana may cause people to get more or less than the recommended amount of sleep, according to a study published in The BMJ.

Sleep Health

Preeclampsia risk may rise with sleep-disordered breathingl

By Maryanne Njũgũna

Research published in the American Journal of Obstetrics & Gynecology noted a higher risk of preeclampsia in women with high-risk pregnancies who had abnormal...

Sleep Disorders

Insomnia, sleep apnea could cause greater CVD risk

By Maryanne Njũgũna

A study published in the European Respiratory Journal suggests that people who have both obstructive sleep apnea and insomnia may carry a higher risk of heart disease...

Keep In Touch

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Nairobi Kenya

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managinarcolepsy@gmail.com